Monday, April 7, 2014

The 5FU Man*Purse

 Listen people, you've got to look for the rainbows
in the storm right?

Rainbow: I *GET TO* call chemo 5FU
for the next while, which in and of itself would
keep me giddy for weeks (so sue me, I have the
maturity level of a 14 year old boy, it keeps me going
these days, and something I love about myself)

Rainbow:  Kyle now *GETS TO* carry a new Man*Purse
aka as 1980's Fanny*Pack for two WHOLE DAYS following
chemo every week.

He left the Huntsman today with a nice neutral black
one and you can bet your bottom dollar that we will
find something as garish and awful as possible for
future infusions.

(Remember "rainbow/storm" ratio)

Rainbow: You cannot even believe all the jokes
that him and Mark Damron came up with in a (literally)
2 minute time frame about where and how he should 
carry his pump.  It's small enough to fit in a pocket,
yet big enough....well, call Mark for details.

Rainbow:  Kyle had a steady stream of love and visitors
today.  Met with new and old friends in the Infusion Room
and was surrounded with love for an entire day by people.

It doesn't get any better than that.

Seriously it doesn't.

We had a warm dinner waiting for us when we got home
and another one coming in tomorrow.

All of these "little things" are huge to us now.

It "takes a village" with cancer.  It takes the love
and help from countless people.  Acts of kindness 
both big and small.  Efforts that make our lives
easier.  Texts and hugs and prayers and well wishes
from both friends and strangers alike.

ALL of these things are RAINBOWS in our life.

They fill our soul with courage to move forward 
through each new hard thing.

Courage on days when we cannot find it inside ourselves.

We are so very grateful for "our village" of people.

We are so grateful for the many many many many 
moments of laughter and joy we've had at chemo.

(Seems weird doesn't it?)

But there have been SO MANY.

Countless moments of laughter and joy up there

at the Huntsman.

It almost seems surreal, yet it is pure love
at its very best.  People loving and supporting
us from the best part in their hearts.

It is a wonderful thing to behold.

So for today, we celebrate RAINBOWS and Man*Purses
and another day in the fight!

And that, that's what I've got.




 Kyle happily (ahem) posing for yet ANOTHER pre-chemo photo.
Seriously, he LOVES getting his picture taken.  Don't be fooled
by his expression.  He LOVES IT!



"Cancer kicks" (aka the most hideous, wonderful, bright, ugly
shoes a human can find to wear to chemo to fight this beast of
a disease!)  AND, superman socks--a gift from Kyle's sister Heidi.  Equally hideous, and yet equally wonderful.


And here we have the 5FU.  Notice how the nurse
is in FULL HAZMAT GEAR just to touch the
stuff!  And THIS, THIS is what they put in my
husbands body.  Pretty insane, isn't it?


The 5FU Pump.  There it is.  The magic 8 ball of chemo.


And finally, we have Kyle modelling the awesome 5FU
chemo pump tucked into the amazing Man*Purse/Fanny Pack.

Yes, he will proudly have this strapped to his
body, or stuffed in his pocket, for the next 46 hours.

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