Tuesday, October 21, 2014

Crossroads

We are standing at a crossroads here in the fight with
cholangio.

I've had a few texts and calls from loving friends so
I thought I would update on our "non update".

Kyle went up the Huntsman ER monday to hopefully get
some answers, things are getting complicated, so answers
are harder to get right now.

They couldn't drain him again (the ascites) because his 
platelets were so low among other things.

Details need more attention paid to them and doctors
are trying to carefully analyze everything before
making the final call.

Kyle met with one more doctor today, who very bluntly 
said to him, "Kyle if you are indeed in liver failure,
you have about 8 weeks left."

That's a pretty brutal thing to hear, even when you
know it's coming.  It rips through heart muscles with a
ferocity that you cannot even imagine.

Even when you know it's coming.

However....

There is a glimmer of hope on the horizon, since no one
can seem to decide if Kyle is indeed in liver failure
or not.
(some numbers would seem to say so, some would not).

Kyle likes to hang on to glimmers and I like to hang
on to Kyle, and for what it's worth?  Despite it all,
ALL of this that's been going on for a week now...

He's literally still smiling and has such a positive
attitude.  It's pretty amazing if you ask me.

He may ALSO have something called portal vein hypertension,
which is not good either, but can maybe be fixed and buy 
him some more time.  In short (and google it if you 
want to know more, I'm too tired to explain it all) it 
means a major blood line into his liver is not working
right. 

This causes liver failure in a sense too.  
And causes the fluid to build up in his belly (ascites).
And a bunch of other not so fun side effects.

But it has a few solutions that work for some people.
And some solutions buy some more decent time.

His liver could be damaged for a number of reasons:

1. cancer
2. radiation (the Y-90)
or
3. chemo
4. or a combination of all of the above.

It's a delicate balance this whole thing is...staying alive
with cancer.  Because sometimes the very thing keeping the cancer
at bay is also killing you in the meantime.

Awesome-sauce, right?

The tumor board is meeting up at Huntsman discussing his case.

We meet with several doctors tomorrow to see what the
final verdict is.

I'm not one to hang my hopes on a miracle in this case,
neither is Kyle, we have always known what the word
"terminal" means here...

However that doesn't mean we wouldn't take a "Hail Mary"
at this point.

We will know for sure tomorrow (hopefully, we've been
saying this for a week now).

And then we will go from there.

In the meantime, we huddle together, bracing ourselves
for whatever comes, standing at this crossroads, with
a lot of tears streaming down our cheeks. (mine mostly,
remember Kyle?  He's still smiling)

That's what I've got for today, it's not the best update
ever is it? 

Sorry.

1 comment:

  1. My thoughts are with you and your family. Hugs to you all.

    ReplyDelete