Friday, July 25, 2014

Bead Boy: Take Two

I am just going to give a quick update about Kyle's 
Y 90 for those of you not on Facebook and getting updates
that way.

It will be the "condensed version" because I am 
exhausted.

Wednesday was Y 90.

Doctors, Kyle and I all expected the exact same reaction
as last November when Kyle had Y 90 the first time.  
A little bit of time under the knife, a little
bit in recovery and then home.  BOOM.

Easy peasy pudding pie.

Last time, he didn't even crack open the bottle of
pain pills.  Last time, we kept waiting for "a side effect"
"any side effect" and nothing.

Piece o'cake.

THIS time?

Different story.

Kyle was awakened DURING THE PROCEDURE, WHILE HE
WAS UNDER ANESTHESIA due to intense pain.


This continued for hours in the recovery room and 
no matter what pill, drip, or IV push pain med they
tried nothing, seemed to touch it.

Apparently he "was fine to be discharged" (not!)

While waiting for the 32 (really just 8) post op prescriptions
to be filled he lay down on the lobby floor writhing
and weeping in pain...so ya, basically he was good to go.

We came home only to be calling the Doctor within the 
hour and headed back UP to Huntsman to be re-admittied.

Here's where ugly meets Dorien, it was not pretty.

We got to Huntsman at 8:30 and by 11 PM had been 
sitting in a room for 2 1/2 hours waiting for Kyle
to get hooked up to an IV pain pump.

He kept saying he couldn't do it anymore, and no
one was helping him at all.

No one.

Everyone seemed to be blaming everyone else for
NOTHING HAPPENING and that's when "ugly" met "Dorien."

Full force.

I lost it.

Nothing will bring out the Mama Bear in a woman like
seeing her husband weeping with pain for 10+ hours.

I yelled at the aide, our nurse, the floor supervisor
and the Doctor.

Then hid in the bathroom weeping for the next 1/2 hour.

I was soooo frustrated, upset, mad, worried...you name
it, I felt it.

At 11:30 PM (THREE AND A HALF HOURS AFTER WE GOT TO THE
HOSPITAL!!!! 3 1/2!!! Three and a freaking half hours

later!!!)  an IV was rolled in and meds were hooked
up to Kyle.

He had a "Press Every 10 Minutes Morphine Plus" Pain pump
hooked up to his arm and by 3 AM his "Rate Your Pain 
on a scale from 1-10",  which started at an 11+, was
down to a 5.

My long story isn't staying very short...but we spent the 
entire day at the hospital, and since it was a Utah Holiday
on the 24th (For the first time EVER I was grateful
for the Pioneers, none of whom where my ancestors)
I got to be with him since my office was closed.

No one knows exactly what caused the pain.

Rouge beads.  Maybe.
Right side of liver sometimes hurts
more.  Possibly.
This is just "sometimes is a side effect"... it is, sometimes.

Whatever the reason?  Kyle was miserable.  It was
the worst I've ever seen him, which was saying a lot--
since he has the pain tolerance of something inhuman.

It was NOT his incision site, that STILL doesn't 
hurt.  It was brutal, burning, stabbing, never ending,
unrelenting, non stop pain on the inside of his liver/belly
area.

The good news?

By 7 PM last night we were discharged from the hospital,
came home and slept.  Kyle feels 1000X better today
and the pain has been easily controlled.

THIS is what we expected from Y 90, but Y 90 had
other plans for us.

Thanks to all who texted, visited, called, brought
food, sent love and hope--we so very sincerely
appreciate it.

We were in the "padded cell" kinda room (it was "shielded")
because Kyle is radioactive...so we had a very hard time
getting all the texts and calls and some of them
dribbled in when we finally had service again much
much later.  

(Sometimes I sat by the window to get better reception
and sometimes that worked.)

So yup, there you have it...we looked Y 90 in
the face for a second time and Y 90 tried to knock 
us down, and for a brief moment it won.

But we pulled deep with all we had and punched that
sucker in the nose....

If you see Kyle after another day or two, you may
officially hug him again, the beads will have lost
their power and he will have lost that "radioactive
glow".

But for now? 

You can call him Bead Boy and high 5 him for pulling
through strongly on one more round of Kyle vs. The Cancer.

And that's what I've got for today.






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