Monday, May 6, 2013

mini updates...

Friday was chemo day up at the Huntsman we called it
"No Face Friday"--as usual, on Instagram (thebompie4)
if you want to ...check it out.

There were, well, no faces.  My sister messaged me and 
said it was actually GREAT, because you can't see the
greenish-grayish-beige color Kyle usually turns by the
end of the day.

Kyle said it was great, since he HATES to be in pictures,
well, no one had to see him.

Win-win for everyone.

Thanks to our niece Megan who brought lunch and to all our
visitors--we scheduled you all nicely and Mary* and Brandi*
didn't have to get mad at us this week for having too
many visitors.

Phew.

Mary says the "popular" guys get all the visitors.
I'm pretty sure "popular" is a code word for "terminal".

Either way, Kyle is very blessed to be so loved.

We even got to talk about placentas and make the staff
laugh in the Infusion room.  And EVERYONE needs a good
laugh with this disease once in a while.

Laughing is good.  Especially with this cancer.

Kyle's veins are just about shot/toast/ruined after 6 rounds of chemo (that Cisplatin is a mother &*$)@@ on them.) ...so we have decided that since there really is NO end to chemo (remember it's chemo til the end with this...) that he will have a port put in.

A port freaks me out just a little....the nurses swear it's awesome and easy and Kyle's life will get a whole lot better
for blood draws and labs and 9 hour chemo days up at the 
hospital.

It's LITERALLY placed under his skin, right next to his heart--
so the chemo drips in there.  Google it if you want to see 
what it looks like--or maybe I'll post a picture next week
after the procedure.

But I've heard scary stories of infection and blood clots--
and listen when your husband already has a huge battle, you
want as few obstacles in your way as possible.

Our next week looks like this:

This Friday PET scan--they will look inside Kyle and see how
the tumors are responding to the treatment (remember no matter
the news, it is NOT a cure....it is just TREATING the symptoms~)

We hope for shrinkage.  

Shrinkage is good.

For some things, shrinkage is not good--for cancer cells it is.

(name the Seinfeld Episode....sorry I digress)

It means the chemo is buying Kyle time.

(WE LOVE TIME! We love our Daddy and our Husband and 
want him here for as long as possible!!!)

On Monday May 13, we meet with Dr Sharma to go over the 
results and see where his tumor markers are at.

We're both pretty nervous.

Kyle FEELS better since starting chemo--we hope that's a 
good thing.

It's very stressful how cancer always keeps you living on the
edge.  

(This is (part of) the reason for that Texas sized cold sore on my lip...does anyone want a picture?  Ask my relatives, it's pretty bad).

Then Tues. Kyle will head back UP to the Huntsman center to 
have his port put in (surgery--but outpatient).  Not sure
on how long we will be up there that day.  

Then Thursday (assuming all is well and healed with the port)
we are right back into chemo.

Two weeks on, one off.

It's getting to be a pattern.

And that's what I've got for today.

Mini updates.

*Mary and Brandy = nurses at Huntsman who put the poison in 
Kyle...it's pretty bad, or pretty good, that now we're starting
to know them by name and they're starting to know us by name.

A HUGE!!!! shout out to those nurses at the Huntsman Cancer
Institute...there are no better people on the face of this
earth.

In a bad situation, they make our lives a little bit better.

They are going straight to Heaven after this life.

Free passes, no holds barred.

4 comments:

  1. I had a port, and it was great! Typically the ports only become infected if you don't have them flushed every few weeks or so. I never had any problems with mine...just a little discomfort for a few days after they implanted it. Its far better than the pain of the nurses trying (sometimes several times) to find a vein after they have collapsed from the chemo. I remember looking at the port and wondering how it was going to look and feel inside of me. It just became a part of me :)

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  2. thanks for sharing that Ginger!! good to hear!

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    Replies
    1. Love your blog, wish it wasn't about CC!! Putting your port in is usually just about an hour or two including recovery. I had my appointment about 4:00 and was meeting friends for Mexican at 7:00!! You will love your port, the good way out weights the risks
      Lots of prayers and HOPE-Cathy

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  3. Oh Dorien, I'm so sorry you have to be living this nightmare! Chemo is awful stuff/great stuff. Annie had a port placed at the beginning of her treatment last year and it was great. We never had any issues with it. A port is less likely to get infected because it's inside the chest wall. It makes blood draws, chemo, meds so much easier. You and Kyle are in our prayers. Hang in there! Sending lots of love and hope your way.

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